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April is Autism Awareness. This combined with some recent discussions about how different things under the wide umbrella on Autism, ADHD or AuDHD can impact on daily life I’ve started this thread which features some of these daily challenges.
(I was hoping to have easily shared reels/videos on a FB site where a lot of this information is from. Due to the forums being anonymous, all attempts to share via links have been unsuccessful. I have/am manually typed the information contained within each video.)
@moderator please move to a more appropriate location, if required
the most challenging thing for people with RSD can be the Perceived Rejectiin. Things that their nervous system reads as rejection.
In response to: Re: Autism, ADHD, AuDHD
Flutterbug9Member
Re: Autism, ADHD, AuDHD
NT = Neurotypical, ND = Neurodiverse
NT to ND: I’m confused, thought you said you have time management
ND to NT: I do, that’s why I have 5 alarms set for each meeting so I arrive early. Don’t you do the same?
In response to: Re: Autism, ADHD, AuDHD
Flutterbug9Member
Re: Autism, ADHD, AuDHD
In response to: Re: Autism, ADHD, AuDHD
Flutterbug9Member
Re: Autism, ADHD, AuDHD
“Control issues” for Autism
what looks like “being difficult” or “controlling” is often a Survival Mechanism for the autistic brain. In a world that feels chaotic, loud and unpredictable, “control” is the only tool we have to lower our baseline anxiety and prevent a total system crash
for an autistic person, unpredictability feels like a threat to safety. When we insist on a specific routine or “the right way” to do things, we are not trying to run your life, we are trying to stabilise ours
eg the “right way” can be
- specific sequence for doing dishes or laundry
- a specific sequence for hanging clothing or storing clean laundry
”Our Space”. When someone moves into our space, it can feel like a violation. For autistic people, our personal space is a “sensory sanctuary” where everything is predictable and provides an area of “safety”
In response to: Re: Autism, ADHD, AuDHD
Flutterbug9Member
Re: Autism, ADHD, AuDHD
Impacts of AuDHD
- getting overwhelmed by things way too fast
- everything feels too loud
- emotional dysregulation leading to snapping at others
- silence after verbal outbursts
- instant guilt following verbal outbursts
- replaying the event over and over in one’s mind
- telling oneself that need to do better
All this due to the brain becoming overwhelmed
In response to: Autism, ADHD, AuDHD
Flutterbug9Member
Re: Autism, ADHD, AuDHD
Lot of people with ADHD struggle with
- overthinking and mental paralysis
- hyperfocus
- emotional sensitivity and rejection sensitivity
- time blindness
- mental restlessness (even without physical hyperactivity
- trouble starting tasks (including important tasks)
- forgetfulness and brain fog
- impulsive talking and oversharing
In response to: Re: Autism, ADHD, AuDHD
Flutterbug9Member
Re: Autism, ADHD, AuDHD
In response to: Re: Autism, ADHD, AuDHD
DogMan79Senior Contributor
Re: Autism, ADHD, AuDHD
Don't know if these will attach in order. This is a section on ASD and Dissocitation, from the book "Unmasking autism" by Devon Price
In response to: Re: Autism, ADHD, AuDHD
Flutterbug9Member
Re: Autism, ADHD, AuDHD
Some reasons autism may not be diagnosed in females until they are adults
Some reasons autism may not be diagnosed in females until they are adults
I worked in early childhood education between 2003 and 2009. And the warning signs they looked for included obsession with trains and mathematical concepts. And certain behaviours which mostly show up in certain demographics
It's under diagnosed in low socio economic groups, people of colour etc. Pretty much anyone other than white collar family white boys
In response to: Autism, ADHD, AuDHD
BlackcloudSenior Contributor
Re: Autism, ADHD, AuDHD
Hi @Flutterbug9 thank you for creating this thread ❤️
even though I wasn’t tagged, so I assume it was because you forgot about me - is that right? 😊👀😅
Lot of rain plus drop in temperatures last couple days are bad combination for my OA.
heat packs helping a little bit
next step, small electric blanket
End of next month before next infusion of pain relief meds
Hoping today is kind to you 💜
In response to: Re: Autism, ADHD, AuDHD
BlackcloudSenior Contributor
Re: Autism, ADHD, AuDHD
oh i'm sorry to hear that you're in physical pain at the moment @Flutterbug9😞
i hope that the small electric blanket you plan to use next can at least help you with the pain. that sucks that the heat packs haven't helped very much. i hope that as time passes that you're no longer in pain ❤️
I have a BUNCH of memes and images I can share - some funny, some insightful, some helpful - let me know if you want me to post them here (it may crowd up the space ahaha) 😉
@Chasingsunsets the meme about the Locked Out with Keys Inside (because lets be real, I read all the other memes too but my brain can only remember the immediate past one 😅😳😓) -- I have memories of doing this many times as a child (pre-medication), including one very memorable time when I had fortunately accidently left my window unlocked and open and so I could borrow a ladder from my neighbours (they were retired, thus home) and climb in through my bedroom window (ouch - I had a cluttered desk in front of the window with my eclectic hoard of sentimental items) because I had forgotten my keys and left them somewhere in the house when going to school. 😅
I feel that is kind of a good AuDHD mix of ADHD-forgetful (x2), ADHD novelty-collecting, and Autistic sentimental-I-can't-get-rid-of-my-items-that-I-have-collected-for-novelty. 😅
I may not be able to keep up with the posts, but that's OK! I will enjoy any of the ones I can read even if I'm a week or two behind at times. 😍 I like to laugh at how relatable they are. I'm pretty sure the video @Jynx posted is "normal life" lol. I did a similar thing on Sunday with packing my bags, washing clothes, folding laundry, linen cupboard reorganisation lol. 3 hours later I hadn't finished packing my bags -- but the washing was clean and the linen cupboard was organised so that was still a win😅.
video @Jynx shared is 100% spot on for me (on physically good days)
pic of the budgies is of one my one tshirts,
same as these 2
In response to: Re: Autism, ADHD, AuDHD
Flutterbug9Member
Re: Autism, ADHD, AuDHD
why do people with ADHD get so defensive and take things so personally when people say things to them?
People with ADHD/AuDHD are known to suffer from RSD. Their brain is constantly alert and read even the smallest thing that might sound negative as critism. Perceived criticism tends to lead to fears of being rejected. To protect themselves from the pain of rejection, there is possibility these people become defensive.
why do people with ADHD get so defensive and take things so personally when people say things to them?
People with ADHD/AuDHD are known to suffer from RSD. Their brain is constantly alert and read even the smallest thing that might sound negative as critism. Perceived criticism tends to lead to fears of being rejected. To protect themselves from the pain of rejection, there is possibility these people become defensive.
@Flutterbug9 I really love that you're using colour for emphasis now!! Can I offer a small suggestion? You may ignore it if you so wish haha, but whenever I see this blue my brain automatically assumes it's a hyperlink, and I keep hovering my mouse over it to see what you're linking to 🤣
Hmmm... thinking what might work better, let's test.
Purple may have the same effect in making me think it is a link, just one I've already visited 😋
Red is often associated with anger, but could still work.
Pink is softer, but could be rough for high-contrast screens - similar to teal in that sense (but teal makes my eyes go funny even moreso than pink, lol).
Green oh my, it is also very bright...
Orange goes alright but might be too close to red and seem harsh...
Dark green perhaps isn't enough contrast...
I don't mind lavender, but like yellow it's a little hard to see.
why do people with ADHD get so defensive and take things so personally when people say things to them?
People with ADHD/AuDHD are known to suffer from RSD. Their brain is constantly alert and read even the smallest thing that might sound negative as critism. Perceived criticism tends to lead to fears of being rejected. To protect themselves from the pain of rejection, there is possibility these people become defensive.
@Flutterbug9 I really love that you're using colour for emphasis now!! Can I offer a small suggestion? You may ignore it if you so wish haha, but whenever I see this blue my brain automatically assumes it's a hyperlink, and I keep hovering my mouse over it to see what you're linking to 🤣
Hmmm... thinking what might work better, let's test.
Purple may have the same effect in making me think it is a link, just one I've already visited 😋
Red is often associated with anger, but could still work.
Pink is softer, but could be rough for high-contrast screens - similar to teal in that sense (but teal makes my eyes go funny even moreso than pink, lol).
Green oh my, it is also very bright...
Orange goes alright but might be too close to red and seem harsh...
Dark green perhaps isn't enough contrast...
I don't mind lavender, but like yellow it's a little hard to see.
Oh my stars what a conundrum!
Perhaps blue is the best choice after all? 🤔😅
¯\_(ツ)_/¯
Good lord, Jynx
What did I ever do to you to deserve this sensory overload?
In response to: Re: Autism, ADHD, AuDHD
tymeCommunity Lead
Re: Autism, ADHD, AuDHD
Mine's ADHD, but recently, work colleagues have really been questioning ASD for me because of how I work.
I've never worked in such a close team so I've never had people laugh at me for the way I respond or not-respond...
Whether it's ASD, ADHD or whatever, I'm content with life and I like myself for who I am - that's important. Because for a LONG time, I hated who I was and I didn't feel I had an identity. @Flutterbug9
In response to: Re: Autism, ADHD, AuDHD
Flutterbug9Member
Re: Autism, ADHD, AuDHD
@tymeThis is the link for the interactive self assessment autism online test I did. One that my psychologist said can be a useful tool.
So easy, the way I like things to be. Answer each question , click “score my answers” and get immediate outcome.
I got a total score of 157. 25 years ago I was diagnosed with ADHD. I don’t know how accurate an online assessment can be, but considering I scored 157 I Do you think that it is worth while getting a second diagnosis?
In response to: Re: Autism, ADHD, AuDHD
ChasingsunsetsSenior Contributor
Re: Autism, ADHD, AuDHD
Haha classic @AlwaysMyself love you story, lucky for your window being open 😂, glad we can all have a laugh about our locked out stories ☺️. Definitely not as funny at the time 😂😂. I still lock myself out today 😂😂
Hooray for your clean cupboard, so productive 🤩🤩
Love your memes @Flutterbug9 and @Jynx I love Coby Watts he always does such relatable ones and some ones that really make me laugh out loud haha 🫶
In response to: Re: Autism, ADHD, AuDHD
Flutterbug9Member
Re: Autism, ADHD, AuDHD
Hi @Glisten I’m not looking into formal diagnosis, at least not at this stage. Far too expensive for me. I’m happy with outcome of 2 different self assessments I’ve done online and so is my psychologist. My psychologist already having offered to write a letter to my new psychiatrist as support for me.
@Flutterbug9 I am totally unfazed about doing both. If an official diagnosis gives me resources and assistance to make my life easier, then I’m keen to progress.
I probably would have scored higher, but context is everything for me. Circumstances, conditions and context.
I have spent my whole life identifying and analysing systems.
So what do I do now? Ask my GP for a referral or do I ask my ADHD psychiatrist?
In response to: Re: Autism, ADHD, AuDHD
Flutterbug9Member
Re: Autism, ADHD, AuDHD
From info I’ve read and been verbally given @Glisten
- some business that do the diagnosis don’t need a referral with person full payment out of pocket.
- some business, with a GP referral, offer Medicare rebate.
some psychiatrists do diagnosis for both Autism plus ADHD. Talking to your psychiatrist could be a good option either that or your GP. Possibly a personal choice
In response to: Re: Autism, ADHD, AuDHD
JynxPeer Support Worker
Re: Autism, ADHD, AuDHD
@Glisten can definitely open some doors to extra support, e.g. NDIS is probably the biggest. Like @Flutterbug9 said, it is very expensive. There's no medication for it, so for some people it's not worth the expense if they're not seeking further formal supports that require official diagnosis. It can be a source of validation and insight, but self-diagnosis is often accepted within the community as valid too.
Guess it depends on what you want out of it 😉
In response to: Re: Autism, ADHD, AuDHD
Flutterbug9Member
Re: Autism, ADHD, AuDHD
@DogMan79 Sorry to hear the post with text in lots of different colours caused sensory issues for you.
I tried all the different colours available days prior to that, felt there was no need to share with everyone what .i had trialled and was aware that one shade of blue was only option available to be used.
@Jynx I would have preferred to have had different option to have mentioned these but I don’t.
Ive be left feeling confused due to few things. Trying to explain how things have left me feeling (not what is right or wrong) in hope of moving forward
1) the entire discussion about large amount of words being in bold and the way my autistic brain reads that, would it have been more appropriate to have emailed me instead of posting onto the forums?
2) due to feeling I had to provide proof to support the impact of large amount of holding had of me, I’m trying to forget amount the entire matter so I can move forward and stay on the forums. I don’t understand the timing of recent comment about use of colour within posts
3) when I’ve wanted to add a heading to something or put emphasis on word/s, I’ve been using blue for quite a few days. It’s nothing new and I was the first person to start using blue for that purpose. I don’t understand wording in
I fully understand your comment about the blue being very similar/same to other things. Prior to choosing to use that blue days ago, I tried all the other colours and found none were suitable. Due to different sensivities that people can be impacted by, colour being one, it is a shame the colour options available are so limited.
In response to: Re: Autism, ADHD, AuDHD
DogMan79Senior Contributor
Re: Autism, ADHD, AuDHD
@Flutterbug9 sorry. My comment on colours was mostly tongue in cheek. No serious distress. It's just more comfortable if NOT those colours. But no drama if it is
I probably would have scored higher, but context is everything for me. Circumstances, conditions and context.
I have spent my whole life identifying and analysing systems.
So what do I do now? Ask my GP for a referral or do I ask my ADHD psychiatrist?
I don't have a formal diagnosis. Just multiple professionals saying probably
Apparently it's best not to google the test (ADOS) but it's okay to know that it's mostly designed for oung cis-het white boys. And anything other than that can be like squeezing a square peg in a round hole. Lots of toys, building blocks to appeal to young boys. The changes they make to adult it are minimal
@DogMan79 I’m quite happy with the way things have been for years ie blue text for username, links with everything else in standard, non bolded black. This entire colour thing started from someone on the forums preferring to bold each and every word (regardless how many) in entire sentences to indicate the importance of all the words.
during 30+ yrs working I was taught that holding or using capitals, apart from one or two words, is deemed the words are being yelled.
In response to: Re: Autism, ADHD, AuDHD
GlistenSenior Contributor
Re: Autism, ADHD, AuDHD
@Flutterbug9 you are unequivocally correct 100% People who write in Caps Lock in Chats Posts or Text Messages are shouting.
CAPITAL LETTERS are appropriate for technical data, acronyms and emphasis.
Bold text is better used sparingly.
In response to: Re: Autism, ADHD, AuDHD
Flutterbug9Member
Re: Autism, ADHD, AuDHD
I have been using blue for limited words on here for emphasis for last week or 2 @Glisten
downside is it’s the same colour that usernames and hyperlinks appear in. Only blue colour works/is suitable of colour options available
I'll add to it (from my own personal experience) a few extra notes on emotional (dys)regulation. For me, laughter. Yep, if I'm feeling uncomfortable or nervous or needing to verbalise something upsetting to me -- I will most often "laugh" or smile whilst saying it.
And people misunderstand this so often :face_with_rolling_eyes:. I mean, yes i use humour as a coping mechanism (laugh or i will cry; find the silver lining, etc) but the physical inability to *not* laugh/smile when discussing something painful... turns out that can also be my autistic attempt to regulate my emotion!
People misunderstand it and think i must not be distressed because i'm able to "laugh". Or they think i am lying or exaggerating (attention seeking, potentially) because my external-expression does not match what i am verbally telling them i am thinking/feeling.
But since I've become aware of what my brain/laugh is doing, i can now verbalise it to people when needed to explain to them that i am not *real laughing* i am *dysregulated autistic laughing* and i cant easily control it unless i stop talking about the topic.
PS - i think a funny but clear sign of this in my childhood... my sister use to hit me (not terribly - just as young siblings do sometimes!) and I would *laugh*. So she would get annoyed that i was laughing from it and then hit me more to try to make me stop laughing -- it make me laugh more!!
As we got older she realised what was happening was not deliberate on my part and then it became more of a fun game for her to make me laugh until i couldnt breathe by mildly hitting me 😅. Not in an abusive way i will be clear; this became a playful thing once i got to 10 years old. 🤭. Yes i am a laughing punchbag?!
In response to: Re: Autism, ADHD, AuDHD
GlistenSenior Contributor
Re: Autism, ADHD, AuDHD
@AlwaysMyself oh my stars, you and your sister - hilarious LOL Reminds me so much of my family and extended family lol
Has anyone on this thread tried CBT and had success?
In response to: Re: Autism, ADHD, AuDHD
Flutterbug9Member
Re: Autism, ADHD, AuDHD
@Glisten I’ve read that CBT is not a good option for people with autism. @Blackcloud has said similar
I did bits and pieces of Schema Therapy last year. Think I’d like to do it again fully with my current psychologist with whom I have a good rapport
In response to: Re: Autism, ADHD, AuDHD
BlackcloudSenior Contributor
Re: Autism, ADHD, AuDHD
@Flutterbug9@Glisten yes, that is true about CBT. I, as well as many other neurodivergent people I know of have found CBT to be really unhelpful and unsuitable for people like us. Plus, neurodivergence is a brain type and many psychologists and counsellors that don't use a neuroaffirming approach and don't have lived experience of being ND themselves have proven to have a lack of understanding of this. Our brains aren't fitted for a one-size-fits-all approach when it comes to seeking help/support, so its much better to have a counsellor and psychologist that has a lived experience of being ND and that uses an approach that is neuroaffirming.
Thank you for the links and explanations. I also get this dis regulation. For me it’s very uncomfortable to sit with and comes with panic attacks and anxiety. I think it stems from complex PTSD. I’ve never been assessed for autism or ADHD.
In response to: Re: Autism, ADHD, AuDHD
Flutterbug9Member
Re: Autism, ADHD, AuDHD
Dysregulation is not uncommon for those of us with CPTSD. It’s to do with impact of things on our nervous system
The executive dysfunction part is so true & I say this as someone that has this exact thing @Flutterbug9 its something I experience/have on a regular basis ☺️😌
In response to: Re: Autism, ADHD, AuDHD
JynxPeer Support Worker
Re: Autism, ADHD, AuDHD
@Flutterbug9 re: your post from the 18th - sometimes it's easier to post on forums so others might learn too, but if you prefer to communicate about certain things via email, feel free to let us know.
Timing was purely coincidental - I had noticed the blue and had a bit of time to write out a post about the fact that for me, the blue makes me think that the text contains a link, rather than just being about emphasis. I thought maybe others might have the same automatic association.
My post was merely a suggestion, not an instruction or anything. I was just letting you know what was going on in my brain when I read blue text like that. The ensuing colour examples and discussion was a mildly humorous attempt on my part to see if there was an alternative.
I hope I haven't caused undue concern! Please let me know if there's any further clarity I can provide 😊
Phrases like "Functional Deficits" generally get thrown around in the same conversations as professionals trying to coerce me onto the NDIS
Possibly owing to comorbid conditions (Dx: Schizophrenia, Seasonal Affective Disorder, CPTSD and Ddx: ASD, OCD and OSDD/DID) I don't have a great understanding of why, or why the things professionals speak about are so important to them
In response to: Re: Autism, ADHD, AuDHD
Flutterbug9Member
Re: Autism, ADHD, AuDHD
when the mind speaks faster than the mouth does
something quite common for me. Nothing unusual for me to be saying words part way through something, an item my brain has finished minutes ago. Quite often find myself talking about something, be part way through and have no idea what I was going to say next. Is like my brain has just become a clean whiteboard. No idea what I was going to say and, at times, no idea what I had starting talking about.
its frustrating, annoying and mentally draining
In response to: Re: Autism, ADHD, AuDHD
Flutterbug9Member
Re: Autism, ADHD, AuDHD
In response to: Re: Autism, ADHD, AuDHD
GlistenSenior Contributor
Re: Autism, ADHD, AuDHD
@Blackcloud preaching to the choir of Executive Dysfunction. My lived experience is that it’s crippling.
In response to: Re: Autism, ADHD, AuDHD
tymeCommunity Lead
Re: Autism, ADHD, AuDHD
Thanks everyone for sharing your experiences @Glisten@Flutterbug9@Dogman. I can see we all relate in some way or another.
It's not always straightforward for to make sense of the a neurotypical world.
processes things and my mind trying to work out how and what to say next, is something I deal with in huge amount of situations. This is common for people with Autism. We stop part way through things (for me that is both when I’m talking plus when I’m typing), we need a short pause from communicating whilst our brain processes things.
have autism, feel like you mind is racing, unable to stay on one theme whilst talking? Thats not uncommon.
I feel and know it happens to me. I usually stop and say out loud “slow down brain”. recent chat with my psychologist went from talking about
- lego to model trains (including where my interest started)
from as early as mid primary school (approx 8 or 9yo) Ive not been able sit and watch TV/DVD without doing something with my hands. Similar when used to go on long car rides with my parents. Have found this information interesting to read plus provides answers
@DogMan79 I’ve never heard of Thriving Kids or Foundational Supports.
Why does Thriving Kids have an age limit of nine?
I *think* that 9 is just old enough to be fairly certain about issues. Lots of kidlets got signed up to NDIS very young. When assessments are based a lot around table manners and disturbing creche nap times etc